Monday, April 09, 2007
Not Your Typical Bubble Boy
Jack and Hunter played out front with a new bubble maker from the Easter Bunny. He loves every moment of his life. I am worried that he might lose that with his surgery.
Tomorrow we fly to Boston for an evaluation appointment at the Shriner's Children's Hospital in Boston. Our primary appointment will be with Dr. Michael Lewis, who is a board certified plastic surgeon. He leads the cleft team for the Shriners.
We've been so impressed with every step of this process with Shriners. I need to make sure I don't forget anything. Immunization record, adoption certificates and pre-surgical imagery.
We are really hoping that they decide to move forward soon with the surgery. Jack is trying so hard to communicate verbally with us, but he just can't make the sounds he wants to make. I know he will get frustrated soon, so I am hoping his surgery gets scheduled sooner not later
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3 comments:
Caroline~
Oh, I wish you well with your appointment at Shriners. I bet it goes just great. It is wonderful to hear how much Jack is enjoying life with his new family. That warms my heart. I know it must be hard to think of having him have surgery but I bet that he will be even happier when he is able to communicate better with you!! What a sweetie!
Good luck!
Jill G.
P.S. We are traveling in 4 weeks to get our 2 yr. 4 mo old daughter Sydney Rose who has a repaired CL/unrepaired CP and we have applied to the Shriners in Chicago.
We are thinking of you all!
Kole goes for his second eval in Chicago Shriner's to see what is next for him tomorrow.
Shannon Bringolf
Jill - Congratulations on Syndey Rose. We worried so much about being prepared to care for Jack with his cleft palate. He has made life so easy for us we almost feel guilty. Let Sydney guide you on her capabilities and comfort level. We found there is hardly anything Jack won't eat. We were surprise to see how much food he puts in his mouth at one time. We think it helps him break the food up more easily.
Good luck and let us know how it goes.
Shannon - How is the second evaluation different from the first. I really hope they are able to determine Jack's surgical needs during this visit. I don't like the sound of traveling up to Boston again if its not for a surgery.
I hope his visit goes well for you and your family.
Best wishes to both of your families,
Caroline
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